The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.
Illinois Spina Bifida Assocation
The Illinois Spina Bifida Association is a 501(c)(3) nonprofit organization founded in 1969 by a group of dedicated parents. ISBA programs are designed to work in partnership with families, service providers, volunteers, and funders throughout the state. ISBA works to accomplish its mission with a three-part program strategy: Promote skills development and independence; Support families through outreach, education and advocacy; and Fund scholarships, medical equipment, research and emergency help. The organization formerly used "Spina Bifida Association of Illinois" as an alternate name. ISBA serves more than 900 Illinois families and has outreach collaborations with spina bifida clinics.